Service user organisations
The Patients Association is a healthcare charity that campaigns for better access to information for patients, equal access to high quality care, and the right for patients to be involved in all aspects of decision-making about their health care.
Carers’ UK is a charity that provides information and advice about caring, along with practical and emotional support for carers. It also campaigns to improve life for carers, and influences policy makers, employers and service providers on ways of improving carers’ lives.
See also the Carers Trust that co-ordinates local carers’ centres.
Disability Rights UK, an umbrella organisation, led by people with disabilities with expertise in supporting people who want to take control of their lives through ‘independent living’ :
AgeUK is an umbrella organisation, providing a huge range of information and support for older people. Their website includes a very detailed summary of “your rights to healthcare.” This will be very useful background information if you, or others that you know, discover that your treatment options are being “rationed” or are no longer available.
AgeUK’s information will help you to be clear about what you are entitled to – and you will then be on stronger ground if you want to challenge any decision about your healthcare.