Service user organisations

Organisations and Support Groups providing information and support for people using the services of the NHS.

The Patients Association

The Patients Association is a healthcare charity concerned that there should be better access to information for patients, equal access to high quality care, and the right for patients to be involved in all aspects of decision-making about their health care.

It’s worth bearing in mind that the Patients Association receives financial support and charitable donations from a range of multinational companies such as Pfizer, Boehringer Ingelheim, MSD, Grunenthal (pharmaceutical companies); Abbott (medical devices and technologies); and Nutricia (medical nutrition for all life stages including babies and breastfeeding mothers).  This funding may or may not influence the nature of information they provide. For example, the Patients Association

Carers UK

 Carers’ UK is a charity that provides information and advice about caring, along with practical and emotional support for carers. It also campaigns to improve life for carers, and influences policy makers, employers and service providers on ways of improving carers’ lives.

See also the Carers Trust that co-ordinates local carers’ centres.

Disability Rights UK

Disability Rights UK, an umbrella organisation, led by people with disabilities with expertise in supporting people who want to take control of their lives through ‘independent living’ :

AgeUK – support for older people

AgeUK is an umbrella organisation, providing a huge range of information and support for older people. Their website includes a very detailed summary of “your rights to healthcare.” This will be very useful background information if you, or others that you know, discover that your treatment options are being “rationed” or are no longer available.

AgeUK’s information will help you to be clear about what you are entitled to – and you will then be on stronger ground if you want to challenge any decision about your healthcare.